openSNP to Close: Data Privacy Fears and Authoritarianism Prompt Shutdown of Genetic Sharing Platform
OpenSNP, a prominent open-source repository for user-uploaded genetic data, is set to close its doors and erase all of its data by the end of April. This decision was confirmed by co-founder Bastian Greshake Tzovaras, who cited significant concerns over data privacy as a driving factor behind the shutdown.
The Reasons Behind OpenSNP’s Closure
In a recent blog post, Tzovaras expressed that the decision to terminate the site was influenced by the financial troubles of 23andMe and the increasing prevalence of authoritarian governments around the globe. These developments have raised alarms regarding the safety and privacy of genetic data.
A Brief History of OpenSNP
Established in 2011 by Tzovaras, along with co-founders Philipp Bayer and Helge Rausch, OpenSNP became a public repository for individuals who utilized commercial genetic testing services, such as 23andMe. The platform allowed users to upload their genetic test results and connect with others sharing similar genetic traits. At the time of its impending closure, OpenSNP boasted nearly 13,000 users, making it one of the largest public genetic data repositories.
Concerns Over Data Privacy
OpenSNP’s shutdown coincides with 23andMe’s filing for bankruptcy, raising fears that the company’s extensive collection of sensitive genetic data might be sold off without regard for user privacy. Attorneys general in states like California and New York have already warned customers to consider deleting their data prior to any potential sale.
The Impact of Political Climate on Data Privacy
Tzovaras also pointed to the increasing rise of far-right and authoritarian regimes as a pivotal reason for the closure. He referenced the removal of public data from U.S. government websites following the return of President Trump to power, emphasizing the changing landscape of data privacy.
“The risk/benefit calculus of providing free and open access to individual genetic data in 2025 is significantly different compared to 14 years ago,” Tzovaras noted. He believes that shutting down OpenSNP and deleting its stored data is the most responsible course of action at this time.
Reflections on OpenSNP’s Legacy
When interviewed by TechCrunch, Tzovaras discussed the timing of the shutdown, highlighting the political climate in the U.S. as a major influence. He expressed concern over the potential misuse of genetic data to support false narratives and even a resurgence of eugenics-like ideologies.
The journey of OpenSNP has always been a balancing act between the potential benefits of sharing genetic data and the inherent risks involved. Tzovaras shared a historical instance where law enforcement utilized data from genealogy site GEDmatch to identify a serial killer in 2018, noting that OpenSNP had never received any law enforcement requests for user data.
A Testament to Open Source Culture
Reflecting on the impact of OpenSNP, Tzovaras considers its 14-year existence as a significant achievement, operating on a modest budget of about $100 per month. He views OpenSNP as a testament to the strength of open-source culture in a landscape dominated by data monetization.
OpenSNP has contributed to a wide array of research across fields such as information security, privacy, and biomedical studies. Tzovaras expressed hope that their mission to “democratize” access to genomic data has been at least partially successful.
As OpenSNP prepares to close, it leaves behind a legacy of contribution to scientific research and a community that valued open access to genetic information.
